Decode Duchenne Program
Decode Duchenne Program
Mar 28, 2024
parentprojectmd.org
Duchenne Muscular Dystrophy
Duchenne Muscular Dystrophy
Feb 25, 2020
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One mom's plea to the Duchenne community — "Don't forget the girls"
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Don’t underestimate a kid with Duchenne. There’s a whole lot of strength you can’t see on a scan. #duchennemusculardystrophy #dmd #duchenneawareness #thisisme #inclusionmatters #strength #courageoverfear | Harrison & Duchenne - Raising Awareness of Duchenne Muscular Dystrophy
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💡 What does “severe phenotype” mean in Duchenne muscular dystrophy (DMD)? When doctors talk about a phenotype, they’re referring to the way a condition shows up in someone’s body, the physical traits and symptoms that result from their genetics. In Duchenne, a severe phenotype usually means the condition progresses more quickly, often with earlier loss of abilities like walking, climbing stairs, or raising arms. This can also bring earlier complications with breathing, heart health, and other a
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💡 What does “severe phenotype” mean in Duchenne muscular dystr…
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Most boys with Duchenne muscular dystrophy don’t live past their early teens. There’s no cure and about 1 in every 3,500 to 5,000 boys are born with it. But here he is at 22 years old, still defying every odd. 💜 Every day is a blessing, and every smile is a reminder of God’s grace. 🙏🏾 #DuchenneAwareness #CaregiverJourney #FaithOverFear #EveryDayABlessing #UnbreakableSpirit #CaregiverLife #LoveInAction #FaithAndStrength #CaregiversHeart #LifeIsAGift #GodsPlan #ResilientSpirit #FamilyBond #Grat
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